Friday, May 29, 2009

ypdate on L and visits

this will be short
The decision was made, they denied visits. The kids will not see him for now. They probably wont until after his release. We do not know why only what the answer is. So now I am working with the kids accepting and being ok with this decision.
L is ok, he was very upset, started getting down and attitude. I told him he is not the victim, the kids are to pull his head. They have to deal on go on with life, so does he. He did not like that but oh well.
Thank you for all your prayers. The kids need them. They are having a hard time but will be ok. I have explained its to protect them, and made sure they know its not to punish them but to punish L. He is the one that committed the crime, that hurt another, they have done nothing wrong.
I'll post more about life in another life

Saturday, May 23, 2009

Park trip today!

Yahoo! We made it! I picked up Nanna and we went to the park! About time I made it to one of the home school park days!
We met some nice ladies! The kids had fun, even those that complained! Chubby had his face painted by another little boy, it was so cute. I cant remember his name, but he was so serious about it, it was adorable! they made some caterpillar things with egg cartons,paint and oh I forget what they are called. (thats what I get for writing at 12:07 am)!
Then Chubby made me flowers for my hair. He was sweet about it. Made sure they were brought inside when we got home. He was very proud of the flowers! Showed them to g-ma! Baby E wore herself out big time! They all did. Boo was not happy about going, him and peekachu both wanted to stay home and get this:
DO SCHOOL WORK! can you believe that? For real, we are at the park arguing, I am saying "we are not going home so you can do school right now, when we do get home your NOT doing school today!" What is wrong with this picture? Parents are not supposed to refuse to allow kids to do school, and kids are not supposed to try to insist! It is my fault, sorta. We usually school year round, taking a week of here and there as we go. This year they wanted a longer summer. I told them when they are done with their school they can have 1 full month, no school. So they are trying to get done. Plus if they dont have their school for the week done they dont get to do fun stuff on the weekend, I made them skip 2 days this week. So they thought their weekend was shot. I wont make them do nothing for the week end, I am the one that made them hang out at the park 2 days this week! Mom needed play time! I had an icky week pain wise, could not work most of it, so I decided I wanted to at least try to enjoy what I could. We do not get to do near as much fun stuff as we used to anymore. Between work, health, school, house, doctors, and everything else that comes up life is different. I think we need some fun, remember what its like to let our hair down and just enjoy the day! So my goal is to go back to 4 day school week! I will alternate my weeks on how I work, or try. But I want to try to take at least 1 day a week and enjoy life, not worry about how much I will hurt later, the next day or whatever because I am doing something, not worry about working, bills(that wont get paid anyway), but just enjoy the kids and all we have. We have so many things around us, we have not done much. We are making our list of things to go see and starting on it! Also Tuesday is Church activities, we have not been making it. I am making it a point to try harder. I am thinking about Tuesday being our day off, maybe hit the city, park, meet more home schoolers, the Y, cow town, or other places we want to go. Then we will already be there for activities at church! I can take lunch and dinner with us, we can just make a day of it. So now hopefully I can keep up and actually do it. I start the PT this next week! I am excited. And one of the ladies I met today does fire cupping. I am going to try that out. Its interesting, I have read some about it, not much. I will be reading more about it. It is interesting.
So I think thats about it. We had a good time today. It was nice to talk to other adults! I am waiting on R, E and kids to arrive, going nuts waiting! I cant wait!
All righty I am going to try for some sleep before they arrive! I will post pics and tell you all about it after they leave!

Thursday, May 21, 2009

update on the over ride and life

So today was decision day and they did not decide! Someone is training and it was put off some. I dont know when they will decide, I will try to find out tomorrow. So for now we are still waiting!
Other than that lets see...........
My little brother and his family are coming to visit me tomorrow!!! I am so excited to see them all! I cant wait. I saw E and kids in 2006, but that visit was when L was arrested she came out and took care of me! So it will be nice to see her and kids, and my bro for fun! I cant wait!
I went back to pain doc today again. My pain had gone up more, and I am so sleepy all the time I cant even start to keep up. So I mae an app to see what we can do different. Turns out I have bursitis in my right hip, was dx'd last fall, the doc that decided that forgot to tell me! He gave me a shot in the hip for pain- its already helping!!! And set me up for physical therapy to help stretch the hamstrings and get my hips and pelvic bone back where they belong. We found out the hospital in my town has physical therapy so I can do it here! He also wrote it out that after PT each week I get a massage!!!! I cant wait! So he wants me to go 2 times a week, but wrote the script for 1 time a week until we knew for sure I could get it close to home, so I have to get a new script for 2 times a week. So I will go do that 2 times a week, relax through the massage! and then see the acupuncturist weekly. I have not seen any help for pain with her, but I have had some improvement with female issues!! For the past oh almost year every month I swell look like I am 9 months pregnant, have pain that puts me in bed, but this month no swelling, and minimal pain! She had mentioned the issues I was having on the 1st visit, so she went to work putting needles in the right places, and it worked! She did work on pain this past week, she also worked with me on some yoga stretches to help stretch my ham string and put stuff in place again.
Tomorrow morning early I am picking up nanna and we are supposed to head to the park for a Fairy fest! Bunch of other home schoolers meeting. I hope we make it. If I dont sleep and feel ok we wont make it, I do hope to. I am thinking about going straight from picking up nanna to the park. Have to see how the morning goes with kids.
So thats all our excitement for this week, I think. When I know more about L's stuff and the visits I will let you all know
Oh NO wait! Sir N turns 8 on Saturday!!! I cant wait! He is growing so fast! I cant believe he is going to be 8!

Saturday, May 16, 2009

prayers please, family fast here

For those of you that have a problem with this ignore it, the rest please join us. On May 21st the committee that decides over rides will be looking at Larry's case, all he has done to get help needed and decide if he can see the kids. This is a one time shot, if they say no there is no other attempt, this is it. The next chance he will have is at release in 2011. He has worked hard, done all his programs and passed very good. He has done more than required, he takes responsibility, and admission, he is honest, open and willing to answer questions to any who ask and care. The kids talk to him on the phone, they also write back and forth. They have not seen him since Dec 3rd, 2006.
We will be praying and fasting from the 20th through the 21st. I am not asking they see him, I am asking the Lords will be done, they will be some how guided to do as he wants. And that whatever the out come we all accept it and are OK. I am truly worried about L, and how he will handle it if denied. I don't think it will be good, I truly feel they will have to put him on a mental health hold again. I am worried. I know the kids will adjust and accept whatever happens. I hope they allow visits, they need it. They talk to him about whats happened, he answers their questions, listens to their anger, and it helps. But I and their therapist feel it will be therapeutic to see him, and help further healing for all. I am calling the Temple to put his name in, as well as the kids. It will be hard for them if its a no, it will also be hard for them to see him, but they want and need to. I know some of you reading have strong feelings, some very against anything to do with him, thats your choice. I hope you can realize forgiveness is required by the Lord for all, and also that forgiveness is actually for the one hurt mainly. I know this has reached many, hurt many, but if the one hurt the most is willing to work through it, and wants to work through it and forgive shouldn't we support that? Maybe try to follow her lead?
Anyway we are fasting and praying. The kids need to see their dad, they need to heal, and I am truly worried and scared of his reaction if its no. He already had one psych visit in the beginning for a suicide attempt when they took his right to even talk to the kids, them giving him the right to talk and write has helped, he has grown and learned a lot. He has changed in many ways, good ways that con only be seen and understood if you talk to him, write to him and are part of his small support system. He deserves the chance to see the kids, more though the kids deserve it.
I dont need to negative feed back on this, I wont go there with any one. I would like to know if your going to pray and/or fast with us please. The kids are even praying and fasting to the ability they can and choose. If you are going to join in I would like to know because I would like to send a list of all who are praying or fasting to L, I think it will help strengthen him, let him know he has people who care and are praying for the Lords will on this.
Missy, I hope your family will do this with us, fact is I was wondering if there is a chance of a group prayer possibly led by Bryan? If you call my skype # it would be on my computer and we could all hear it here. Let me know, and I will send you my skype # if you dont have it. I just feel strongly I would like to have a Priesthood holder lead the prayer if possible. I dont have anyone here to do it, I thought of you and Bryan. let me know please
love you all
jae

Tuesday, May 12, 2009

Birthday party pics!

so here they are. I bought balloons, hats, cups, a b day sign, plates, party blow things, and pin the tail on the donkey! Made one happy 6 year old!
enjoy the pics!

Today is my chubby's Birthday!!

Yes he is 6 years old today!! I cant believe it! I work this morning then its Birthday time! We were going to attempt an outside at the park thing, but its looking kinda icky outside! So I am thinking inside will have to do. I will take LOTS of pictures and put them on later! You know what he said this morning? It was so cute. I woke up, then he did. I said "its my baby boys birthday" gave him a big momma hug, he says "Im not a baby now mom I am a big boy" Well how do I argue that? I am encouraging big boy stuff, but he is MY baby! So I decide I will let him think he is a big boy, but secretly he can still be my baby boy! So he is not allowed to read this blog entry- ever!

Today is also Fibromyalgia Awareness day! Check out this site to learn a little more about it http://www.fmaware.org/site/News2?page=NewsArticle&id=8833
I have been doing a lot of reading, trying to find some new ways to help relieve pain. I have some new ideas to try. But thought that it being Fibro Awareness day I would share a link, there is so much more info out there, if your interested ask me, or do a web search. Just be careful not everything you read is true!

I walked around the house the other night and took pictures of some of the flowers growing! I have a beautiful yellow rose bush! I did not know about it! Lots of other pretty flowers, yellows, purples I love it! I dont know what all the flowers are. I wish I did. There are some small yellow that are beautiful, some white, some purple, I have no clue. I am not good at identifying plants, this is where Ineed Sister Chandler!! She can identify anything! She is awesome when it comes to that no one can top her! So PPresident Chandler, show her my pics and ask her if she knows please??? Before I go insaner!Is that a word?
To bad my NEW mower wont start to mow my over grown lawn that looks horrid because its so long!Going to take it back as soon as I get a chance, My yard looks terrible because of not being mowed, think I am going to end up paying someone to do it for me!
Heres the pictures:

Friday, May 8, 2009

Fruit snacks, fruit rollups YUMM YUMM

So yesterday i tried out the dehydrator for the first time! It was interesting, fun and a learning experience!
Heres what I made:
#1 took 2 jars apple sauce, 1 can pears, mashed in blender, put parchment paper on rack and poured mix on it, spread evenly, put in dehydrator

#2 2 cans drained peaches, 1 can pineapple, blend, add cinnamon, nutmeg, all spice, pour over rack,

#3 4 banana, 1 can pears- blend

#4 pumpkin mix like for pie with out eggs, only a touch of milk, spooned into little round dots all over the rack

#5 pears, spices- cant remember what use your imagination

#6 baby carrots- Baby aE and Chubby put these on a shelf, carefully arranged them

#7 grape tomatoes- arranged by chubby and baby e also, these are still not done. I did not know I needed to par boil and remove skin first, so they are shriveled slightly, not sure what i will do with them
every thing else cooked until around 2AM, about 18 hours total. This dehydrator has 2 heaters/fans. I did not realize that and only turned 1 on. I also only turned it on medium, not knowing anything, all guess work. I discovered the 2nd on switch late afternoon, turned it on high, turned them both to low when I went to bed. I woke up around 2 am and took all out but tomatoes
they are all yummy. Ok the bananas not so yummy, we could all skip them. Next time I am going to take notes as I go, and I am going to try more soon. I am going to move the dehydrator, it puts out LOTS of heat and makes the house hot. Its worse than the oven! I like the peach the best! They are good. the pumpkin I think I should have made thicker and cooked less time, maybe a touch more sugar. but they are good.
I did not get to do the Orange Julius ones, I will try this week

Thursday, May 7, 2009

update on the doctor Visist Tuesday

So I saw the doc on Tuesday. I have wait to post because I was/am not happy about the visit. They say no Scoliosis! So thats good, the curve in my spine is abnormal but its also minimal, the doc said not to worry. So then he checks my walk, my muscle in legs, and back, hips all that. The final verdict, UGHHHHHHHHHH
1st I have fibro- well hello DUH!
2nd I have arthritis in neck,back, and hips- Surprise- NOT
3rd My ham strings are so tight they are pulling my pelvic bone back, moved my hips outta place and are smashing all my muscle and stuff in my lower back. This is new! This can be fixed! I have to start stretching repeatedly through the day. Eventually with lots of persistence they will loosen and allow my pelvic bone to go back, hips to realign and I should have less pain in pelvic area/hips and lower back. HOPEFULLY. He claims the running I used to do, when I stopped and stopped stretching contributed to this problem. I dont know.
So back to the back- spine and neck. The curve is nothing to stress over. I have Myofascial pain syndrome (MPS)- big words for I hurt! Surprise! He also says he is positive there is more going on, he does not know what. Its not showing on the tests that have been done, and its to expensive to do more tests, not worth the expense he says! I am thinking I dont agree with that one, its me hurting, if there is a chance of finding out what, and even a slight chance we could do something to improve its worth it to me, but hey its only me, my quality of life, I am a nobody! GRRRRRRRR
My balance, falling, all that are related to the hip/pelvic bone being out of place.
So the plan you ask. Well Because I am honest with anyone who asks about my past it once again comes back and bites me! I had to sign a drug contract, standard for anyone with chronic pain. Basically I agree not to go doctor shopping looking for more pain meds, I promise to take only what he gives me in the amounts he gives me, no street drugs, no selling, 1 pharmacy only. In return he has to treat my pain, if what he gives me is not working he will try other meds. Now its standard to put in the contract that I agree to do random UA's checking for illegal drugs and others that are not prescribed for me, and that I do not have a higher dose than allowed in my system. I can see this, but I was told due to my past they will be enforcing that. I was pretty upset over it. I stopped drinking New Years Eve 1997! I have not done drugs of any kids since Jan 17, 1993! So now it comes up, I have to pee in a cup. All this time, I did not like being treated like its not been long, or I still have a drug problem. And theres not much he feels can be done. I am in pain, according to him thats life. He increased my fentynal to 50 patch, and gave me 2 10 mg Endocet a day if needed. I wont take 2 a day, I need to be able to function and take care of kids. He stopped the muscle relaxers I was taking at night, so guess who sleeps less due to muscle spasms all night!
So I left his office, went to the grocery store, cried for around an hour, called my awesome friend Dulie in Washington, cried to her. She is in constant pain, she understands. So why the tears? Well its hard to be told we cant fix you, even though I knew he could not fix me, take away the pain, and not that I want more to be wrong, but I was really wanting something that could be fixed to be wrong. If it had been new but fixable it would have meant less pain eventually! But nope not happening. I can help the lower back with stretching. He also wanted to do Physical Therapy, well I am 45 minutes away, not an option. I could get the same results at the fitness center in town, but once again thats an extra 30 a month I just dont have. If I did I would be all over it.
So nothing new really, life goes on. I had an emotional time after the app. Yesterday was kinda well I dont know, and now I am irritated but moving on. I will keep doing all I can to make me better, see the acupuncturist, and anything else I can manage. Eventually somehow, no clue on how but somehow I will find a way for the fitness center if possible. It will take me a while, no clue how long but thats ok, eventually I'll find 30 a month for it. Until then- even after I will keep with Tai Chi and TTAPP. I am not supposed to go doctor shopping, and get meds from any other doc. But I am considering looking anyway. Not for the meds, but because to tell your patient its not worth the money to do tests, she had Medicaid and has to deal is unacceptable to me. I have to wait for my copy of my contract to come in before I do much, dont want to get in trouble. I dont want more pills, narcotics, I want better quality of life, to keep up with my kids, to enjoy them more without it hurting, to pick up my baby when she gets hurt and not have it hurt, to pick up chubby and spin around with out it hurting. This is probably a pretty whiny update, sorry. I dont mean it to be. I will keep doing all I can, and most of my relief will come through alternative medicine, acupuncture and stuff.
I know the doctors were wrong 15 years ago when they gave me 2 years to be in a wheel chair. I may never be pain free but I dont believe my life has to stay this way, this much pain, and the pain meds. So I will keep doing what I am doing, looking for other options, and let needle woman poke me weekly!
On an up note my adrenal support came, the homeopathic and tincture! Its been 3 days, today day 4, and i already see an BIG difference in how tired I am. My energy level has increased a lot. I was able to work yesterday, plus get the shelfs in the cellar up on blocks, and all the cans/jars of food down there, organized nice and neat so we can tell what we have. I'll take pics later- you know how I am! I grocery shopped Tuesday after doctor. $700 in groceries, my food supply is building! Eventually hope it is enough I dont have to stress if I cant go shopping for a while. I also was given some recipes for eating raw! Some of them are for the dehydrator, and that got me looking for recipes. We will be using the dehydrator today!! FINALLY! I cant wait, I am excited. I found a recipe for Orange Julius fruit leather!I LOVE to drink em, I like the thought of having a snack tasting like one!! and its fairly nutritious! I wanted Rasviolies again, they were out at the store, sooooo you know what I'll be doing again! Plus with no wheat in my diet for a month I will be playing with the dough recipe for them. Maybe we can make them actually look pretty this time! Probably not but hey as long as we have fun making and they taste good!
I am working on the blog for Autism/Aspergers Still no name. I am thinking about Living under the umbrella and still getting wet! or Boo came up with Autspergers to go. I asked Boo what he thought, that was him and Gma's idea. So tell me what you think? Any other ideas. I plan on having a vote here today, maybe, unless I just pick out of the options I get. So I need some suggestions.
I hope this does not come across as whiny and complaining and blahh. I am feeling betterthan it sounds. It too me a day to process the doctors ideas,and stuff. But I am ok today.

Wednesday, May 6, 2009

sick baby girl

My Baby E is sick! I dont think its to serious but she is miserable. I dont know about other moms but I know how I feel when one of my kids is sick. For some reason it brings out a more sensitive side of me. I think I take a different approach than many. I try to go more natural. Soar throat- they get garlic honey. They love it, it sooths the throat and the garlic help fight any bacteria in there, and it does it fast. Then out comes the Eucalyptus oil, mis it with some olive oil, and depending on whats on hand, today its Deliverance oil. Rub it on the chest, neck, back and most important the bottoms of the feet.so she has has several good massages tonight as I work the oil into her tiny feet, and back and chest. A few drops of the herbal sinus drops I have for the nose. Her nose is draining down her throat and gagging her. The drops will clear that right up. And a little baby Motrin. She is asleep again, on my bed. Hope she sleeps better for what time is left to sleep. We have been up off and on all night.
I know lots of other moms do it different ways, and thats ok. We each have our methods of treating and caring for out babies when they are ill. I have done lots of reading, have lots of good friends who have studied, A couple master herbalists, a holistic doc, and aromatherapists. So I have lots of good knowledgable people to help. And if I feel like thats not enough, not doing the job for whatever reason we can always go to the pediatrician.
Recently I and a few close friends were accused of not having a testimony of the Gospel due to using "alternative medicine" Boy did that get me going, my worst side ended up going. I was told its magic, and many other things. Trying to explain that no its not, herbs were put here for the use of man by God got me nowhere. This person did not want to listen.But in the end he is not worth the stress, or arguing, lowering myself to his standards. I know what I believe, I also know many times the Lord guided me to use more natural approach. I am not against medical doctors, I think it all has its place. Preventive care can go far for keeping the doc away, for keeping a person busy!
Well my baby is asleep now, I am going to go lay with her and catch a few zzzz's while I can lol its 5:32 AM, wont be much sleep. Later I'll update on my doctor app yesterday.

Monday, May 4, 2009

a thought! holy cow I have them at times!

So we have all this meat to cook now. My kids eat a lot but not that much that fast, and I really do not eat much meat. Maybe I should have a BBQ and invite people over! Only problem is I dont know any one close by, so who do I invite???
And then theres the cleaning the house for company. and the yard needs mowed and we still have not started the mower, and my dog is a pain. Maybe I should not have a BBQ. hmmmmmmmmm
I know I am going to cook a few nice meals for the couple I am doing the trade work for with for the acupuncture. hm looking at that sentence and its not right! but oh well! I think I am going to have to make Miss Loo mad and make her do school work! She wants to go see friends tomorrow when we go to doc apps. But she has some schoolin to get done first!
I already blew the diet, small glass of chocolate milk! I am sooooo pathetic! but hey I already knew chocolate and milk are 2 things that are not good for me, they make my tummy and head hurt, so really there is no point in cutting them from the diet just to see if they make me sick, I already know they do! And if I am dumb enough to drink/eat them then I can deal with the migraine! But chocolate is so worth it, especially if its good chocolate.
Guess I better find the self control and behave myself.

SOMEONE UNPLUGGED THE DEEP FREEZER!

WAaaaaaaaa!
Dont know who, dont know when! But someone, some how unplugged it! I went to the acupuncturist this morning. Come home from a fun filled morning of needles poking me, questions and energy massage! Nothing like a needle in the for head right between the eyes to get ya going for the day! So she poked me, and did a little energy work. We talked about my um diet- eating habbits,, my skipping breakfast and lunch almost every day and picking at my dinner. So she puts me on a cleanse of sorts, cuts out LOTS of foods. I eat this restricted diet for 1 month, my breakfast ans=d mid morning snack now consist of this berry flavored yuck! In a month I start introducing foods a little at a time. The whole point is (according to her) to check for food sensitivities, see if its part of my problem. I think its just torture, needles all over in me is not enough I guess! She was able to pick up on some health issues I have with out my mentioning them, so she may know what she is doing a little. So anyway I get home, mom says "got something to tell ya" I am thinking great who do I have to beat! The deep freeze was unplugged, almost everything thawed! WAAAAAAAAAAAA
So we will be doing some bulk cooking. The couple I feed in trade for the needles to be stuck all over me will have lots of meals delivered soon!
I also received a couple treats in the mail!! A homeopathic for my adrenals, and a tincture for them also! Maybe I will get some energy! They are nasty tasting! Why do they have to make things like that so gross? If its good for ya it really does not have to be gross!
SO we will be cooking away! I am not feeling any better from the needle torture. Hope it helps eventually. I will go a few times before I give up. If nothing else it gives me a couple hours of quiet, no kids, to just lay there and be lazy!!
So yesterday was Sunday. We went to Church, made it the whole 3 hours! The boys had to talk to the Bishop, that went well. There is a youth Temple trip coming up. After Church we went to a members home for dinner! It was nice to actually meet someone in the area and talk. They were very nice and we enjoyed it a lot. The kids had fun. Baby E and their daughter- same age, b days 2 g=days apart had so much fun. Baby E loved it! Maybe she will go to Primary next week! If not oh well she will hang will me in SS and RS, or the hall, wherever I go. The others all had fun. We had Taco Salad! Always a big hit with my kids. We got home, it was bed time. Everyone was tired. Loo gave me a long massage with clove oil! It felt awesome. She really has a natural talent for massage, and she picks up on where the pain is easily. She rubbed for almost an hour! It helped, when I first woke up this morning I had minimal pain. I was working an early shift and suddenly my right shoulder and neck decided I am a gimp today! They hurt still. When I get a break I am going begging for another massage!
Tomorrow we have med checks and I see the specialist over this curvy spine of mine. I hope he does something to help. I really have to much to do to slow down. I dont have time for the pain and its really annoying me, no actually I am just flat out ticked off! I did get a blessing Saturday night. I feel good about the needle torture and doctors I see. I know I am in good care. I also know I will never be totally pain free, but if I can at least have energy to keep up, that will take the adrenals working right, and have a little less pain I will be happier! Or maybe be able to accept my limitations? na no time for limitations here!
OK TRIED THE HOMEOPATHS AND TINCTURE FOR ADRENALS! ewwwwwwwww YUCKY! It dont get much worse! Its worse then the berry drink needle woman has me drinking! GAG!ICK! SPIT SPUTTER! It better help! If not I am sending in a complaint, that is some truly nasty stuff!
Well I have 15 minutes till I have a break! I cant wait to talk Loo into a massage. I need to come up with lunch from my list of foods I can eat! We are making some bread with rice flour, oat flour(YUMMY) and well I cant remember what else right now. Typical bread stuff. It will be bread!
I am going to set up a different blog on Aspergers. I am trying to come up with a catchy name, but not coming up with anything. If anyone has any ideas let me know! I need suggestions! HELP MEEEE!
Ok love ya all!

Friday, May 1, 2009

oh and a question for my readers

I am constantly giving info on Aspergers, links and things I have learned dealing with my children, also the Tourettes. I am trying to put all the info together in one place. I cant decide if I should just put it all here, or start another blog for only that stuff. So I would like your opinions. It would be open to anyone if I do it in another blog. It would make it easier to read the info, no sorting through everything else to find it. I could have the links to info in 1 place. I could set it up so people can ask questions and get their answers- if I know. So tell me what ya think, either email me or comment here. Put it all here or in a different blog just for AS/tourettes/attachment disorders/anxiety disorders/bi-polar/DID and the other issues we live with. I am no expert, but I have a lot of resources. I am giving info to others a lot. Each time I do I have to go through all my stuff and send it on. With a blog for it I could give a link and its easily found.
I also would like to know what interests you in the disorders/syndromes? Specifics please. I know some of the obvious, but sometimes I run into odd questions. So new blog or here? and ask questions so I can try to cover anything I know or point people to the right place to get answers. I am leaning to a Blog that is separate. I can organize it easily.
Love ya all
Jae

Poke me please!?!?!?!?

Ya I HATE needles! So what have I done? Well at the suggestion of my doc I am giving acupuncture a try! I met the lady I'll be seeing last night. Did a book full of paper work! I swear she asked more than most doctors do at a 1st visit. She is thorough! I filled out a questionnaire that cover every part of my body, bones, muscles, digestive, lungs/heart, adrenals, female issues,pain, urinary, and more. She will go over all the papers so she can help me more starting next week. She will be working with me on diet. Not in the typical sense of a diet, but just eating right, finding foods that cause a problem for me. I already know me an chocolate is bad- insta migrain. Sure do hope she does not find anything else I like and should not eat! Monday I will see her for the 1st treatment. I have to keep a food diary for 4 days. Thats scary! Not that I over eat, if anything I under eat. When I do eat its usually a healthy meal, but I dont eat regularly like I should. Guess I'll work on that!
My kids are freaking out over it, they have even tried to forbid me to go! LOL! They are picturing gigantic needles sticking in me, blood all over and extreme pain. After I have been a couple time if they continue to spazz I may see if I can take them 1 at a time to see. Just the older ones. I dont know if this will help, but its worth a try!
I will giver her a try, I also see the new pain doc next week. Between the 2 maybe something good will happen. I'll be working more. They have let me know they are going to enforce the required hours for each certified call. So For the one I will work 15 a week, and the other 20. May not sound like a lot, and I do need the hours, actually I need more. I have been trying but my pain levels have been making it hard. But I am going to have to manage somehow. Its only a total of 35 hours a week. Eventually I plan on making it to the 40 a week mark. My doc is not happy, will be more unhappy later but unless he wants to come support the kids he cant say much. Waiting for disability is just not an option, I have kids to take care of, bill to pay, house to fix, and we need a life.
I have almost decided to cut my hair again, almost! Maybe............

Lets see its May 1st! We have 2 birthdays this month!!! Chubby turns 6 on the 12th!! He is excited, so am I! Not sure what we are doing for it yet. And then Sir N turns 8 on the 23rd!!! He will be of age to be Baptized! Unfortunately he wants to wait until Larry is out of Prison and can Baptize him. Thats not a good option. Larry wont be released till 2011, and then he has a couple years Parole, and then he can start working his way back to holding the Priesthood, if he chooses to when he is out. It will take him a long time to do it. Sir N could be 14 or older before being Baptized then. I hate to see him wait, we don't even know that Larry will ever be able to do it. I am trying to find a way to get him to want someone else to do it. Unfortunately unless its a family member he loves I don't think it will happen, and since all family lives a min of around 5 hours away and wont make the trip for it thats not an option. BUT if any of you family members that could do it are willing and able please let me know, maybe you can get him to do it. I wont force him, or even pressure him. I will gently talk to him, continue to try to help him understand the importance of it, and wish someone in the family would come out and do it. I will be praying about it a lot this month, I think I will even fast about it. This is one of the few times I really wish we had family close by to help. The boys especially could use a man to take an active role in their lifes, guide them, answer boy questions and all that. So will any and all you Priesthood holders please consider coming out to Baptize him, or maybe just call him a few times and talk to him, try to encourage him??? Please???
You can email him at my email, or call him. Let me know if you need the phone #.
Not much else going on right now.
I have been talking/writing to my cousin Jolie! Its been nice to get a glimps into her life, see her family! We had not talked in years. Its made me remember lots from my childhood. Things about her and other cousins. I remember her coming over and practicing playing the flute! I dont remember if she was any good, were you? I cant listen to ACDC with out thinking of you, it was played at a birthday party- I think 16th but not sure. I can remember spending time together, parties and playing pool as teens.
This made me think of other cousins I spent time with as a child and teen. So many fun things. But as we all got older we drifted, went separate ways. I dont know why in some cases. In some I do know why, but I wonder about everyone often, think of them, pray for them and would love to hear from them. Sleep over, parties, camping, and so many other things. I have loved seeing a little of Jolies life, I wish I could talk to other cousins more, be it by phone or email, even snail mail would work! Its been a long time since I have talked to most. I moved away, and honestly pulled away from family in many ways. And as we age we sometimes just grow in different directions, forgetting to say hi, check in once in a while, drop a note or whatever.
Just going on with our lifes, the business of the everyday world. I wish I could keep in touch with all my cousins, see how they are, hear from them once in a while. Maybe even the aunts and uncles!
Well I have things to do, hair to decide what to do with, and since I have to keep a food journal I better eat right, make it look better! What sounds good?
Probably home made yogurt with a touch of brown sugar, ground up flax, oats, and bran! YUMMY! Maybe a little vanilla! Ya I think thats what I will eat!
love to hear from you all! Write me, email, comment, call, whatever!